Your Stories: Leslie

October 22, 2008

I had the max in a mastectomy, cmf chemo for three years, loneliness and despair starting 31 years ago. A golf buddy gave me a sleeve of golf balls as a gift when I was in the hospital and dragged me out to play on Sunday afternoons the following season(s). My game only seemed to suffer about one week a month (when my eyes blurred and nose ran). That I continued playing golf was inspirational to many women in this small town.

I lost my hair for only about six months, gained 40 or more pounds even on a low calorie diet and began to drink too much too frequently, but I came back and I came back a better person.

Educating myself about cancer, especially about nutrition and vitamins, journaling constantly on my typewriter and tearing up my writings the next day after reading them allowed me to release some anger and see my concerns more objectively and consequently relieved some stress. I had been a part time writer and photographer but stopped working because meeting the public was too difficult on chemo. I managed to write research articles for other publications free which boosted my morale.

A year after chemo I started about four years of weekly psychotherapy. I gave up drinking almost immediately and began going not to AA but to Alanon meetings because other people’s drinking really began to bother me.

I combined my own extensive study of drinking while also joining a very concentrated, 12-week program in a family alcoholism training program in a rehab center in a large hospital. My understanding of relationships and communications, especially when influenced by addictions, grew tremendously. I learned an entirely new philosophy.

I also joined a gym and worked out at least 3 days per week. All these people in these programs became my support. Having had a daytime job prior to cancer I had cultivated no real daytime friends apparently.

After I left my therapist I had a couple of lunch dates with her and saw her professionally a few times. She said I had truly changed, which I believe. I learned to protect and value myself, to express my feelings until I could release most of the bonds of anger, anxiety and sense of injustice that gripped my core. Never drinking and avoiding tranquilizers or anti-depressants allowed me to feel these body cues and work on the negative feelings until I resolved them.

I think all of this must have been a large part of my recovery and allowed me the privilege of living so healthy and continuing to grow in so many ways all these years. None of this was planned ahead of time – ideas and opportunities just flowed my way and I heeded them. This is as close to spirituality as I come. I shall be 80 next month.


Your Stories: Paulette

October 20, 2008

After the cure is accepting your stories about life as a survivor. Send them to afterthecure@gmail.com and we’ll post them here!

From Paulette:

I am a survivor of cancer and all its mired treatments however getting through all of the ongoing crap that goes with the post-cancer period is really what I consider surviving this disease being all about. It is always so confusing and frustrating to have “successfully completed treatment and survived breast cancer” only to be saddled with other continuing chronic symptoms that never seem to dissipate and no one seems to acknowledge are truly real. Having people tell you how great you look but still feeling unwell convinces you that there must be something wrong with you. After all, every other survivor you read about is “getting on with life” and you seem to be stuck in a post-cancer time-warp. I’m slowly dealing with my chemo-brain symptoms, but I don’t know if I will ever reconcile myself to the loss of what I considered one of my greatest assets…my memory and the visual cues that accompanied it. I’m really happy that this research is finally getting out to the public. This information has been sorely needed and will benefit every survivor, whether they have post-cancer symptoms or not.


Message from the Authors

October 10, 2008

Welcome to afterthecure.com! This site is is intended not only to tell you more about our newly published book, but it is also a place where you can access useful information and links and share stories with other survivors about your recovery. We want to hear from you; click on this link to get started. Your voices can make a change in how the experiences of survivors are understood by society and addressed by the medical community.

- Saskia & Emily